Privacy
Protecting your privacy
We will label your information with a study number. The list that links a person’s name to their study number will be stored separately. We will store all your research records on secure computers. We will not use information that identifies you if this research is published.
Clinical data
Clinical data collected about you during the study will be included in your medical record because the research involves your care.
Medidata app
The Medidata app will collect your name, email address, and mobile phone number but will not share your personal information. The only data shared with the research team are your responses to the questions. Data entered into the app is .
There are some reasons why we may be required to share the information you give us with others. The most common reason for this is to make sure the research is done safely and legally. This is explained more in the Health Insurance Portability and Accountability Act (HIPAA) authorization.